Life Lessons

The world keeps spinning.

Life goes on.

These are two thoughts that I have been marveling over the past few days.

No matter what tragedy hits, what pains one endures, life does not stop.  Even though you sometimes wish it would.

Just for a second.

Just so you can soak it all in.




But the earth will revolve around the sun.  Day will bleed into night.  Diapers still need to be changed, mouths fed, and life demands to be lived.

On February 2nd, my beautiful sister in law gave birth to an adorable little boy.  He was so precious and sweet and we all fell in love with him instantly.  They named him Max.

After a few days, it was discovered Max had Ogden Syndrome.  It is an extremely rare (so rare that only two families in the world are known to have it) genetic condition.  I think it is caused by a lack of a protein.  I am not sure.  But Ogden Syndrome only occurs in male babies, and they never live past 18 months.  Most of them don't even live past 9 months.

We cherished every second with little Max.  My family didn't get to see him until he was 2-3 months old because someone was always sick.  But the second I held him, I understood how special and sweet and perfect he was.

Watching him fight for his life hurt us all.  He was such a brave and valiant little boy, fighting for the chance to live.  He triumphed over many odds.

On Sunday, Father's Day, my little nephew quit this mortal life.  He decided to go back to his Father in Heaven.

We all knew it was coming.  We knew he wouldn't be with us long.  But my heart broke for my brother in law and my sister in law.  To lose their son on Father's Day just didn't seem right.

I admit, I prayed frantically, desperately that little Max would hold on for just one more day.  Just so Father's Day wouldn't always hold the painful memory of losing their son.  I tried bargaining with God.  It didn't work.

Thinking back on it now, I see how nice it must be for little Max.  He got to go Home to see his Heavenly Father on Father's Day.  In that light, it is a little sweet.  Appropriate, even.

It isn't the end.  At least we have that knowledge.  Max was sealed to his parents and sister for all of Time and Eternity.  It is good to know that he will still be a part of the family in the next life.  So good to know that.

And amazingly enough, life has continued.  The birds are singing, the children demanding to play in the sprinklers, to eat popsicles, and enjoy life.

That is a hard lesson we all must learn.

To continue enjoying life despite the difficulties of life, or death.


mub said…
Amy I'm so sorry to hear about this.
Unknown said…
Life just doesn't seem fair sometimes. But it's good to know that all this little guy needed was a body. And that he will be with his family in the next life.
I'm so sorry for your lose. My thoughts and prayers are with you and little Max's parents. {{{HUGS}}}
Crystal Collier said…
Randy (don't know if you remember my brother Randy) left us on Christmas day. These special children get special treatment I think. Little by little we heal, eh? And one day we look back on it with perspective.

My prayers are with you and your family.
Jeremiah 29:11
"For I know the plans I have for you," declares the Lord. "Plans to prosper you, and not to harm you, plans to give you a hope, and a future."

This has been my mainstay for the last year and a half. I hope it brings some peace to your family.

My little baby, number 4, is 2 weeks older than your nephew. Her name is Hope. She is named for this scripture. Though I have so many reasons to squeeze her tight everyday, you have given me one more.

Jenny said…
Oh Amy. I'm so sorry. Sending prayers to all of you. I'm so sorry.
Lisa said…
In tears for your family. Sending hugs your way, and even on to your sister in law. Hope you do get a moment to slow down. We all need one when something like this happens.
Susan Anderson said…
So sorry about little Max.

So glad that his parents and family know where He is and can find comfort in looking forward to a reunion one day.
Noodle said…
Me and My mom saw this in the paper =(... so sad... But what a speical little man that your brother and sister in-law got blessed with... To be so awesome that all the little man needed was a body so complete his mission here on earth... And to know that we can countinue to love little max in the here after... I don't think I would have ever healed with out that knowledge after our misscarage... And I didn't even know that little sprit... My heart breaks for you family and I hope the lord will bless you all with the comfort you need...
Emmy said…
Oh I am so sorry. Yes, this does seem so hard for it to happen on this day-but yes maybe truly appropriate.
Terra said…
oh my, oh my....I am filled with - gosh I don't know what i am filled with. What a tough pill to swallow. Hang in there - happy thoughts out to all your family

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